Two years ago, Addy Joy Sooter’s grandma noticed a little “hitch” in her granddaughter’s step.
Initially, Addy’s mom and dad didn’t mull anything of the minor change in the 2-year-old’s foot, until several visits to the doctor established the most difficult — Addy had a deadly tumor on her intelligence stem.
Later that time, the toddler was officially diagnosed with Diffuse Intrinsic Pontine Glioma, or what is known as DIPG.
According to defeatdipg.org, DIPG is “a brain tumor found in a part of the ability root “ve called the” pons. The pons restricts critical bodily functions such as heartbeat, breathing, swallowing, eye motion, sight, and balance.”
The aggressive tumor is known to affect exclusively juveniles, and it encroaches with virtually all daily pleasures, including the ability to move, talk, ingest, and drink.
While the survival rate for DIPG patients “very low, ” the Sooters still hampered high hopes for a heal for their newborn girl.
In her first three months of treatment, Addy seemed to be greeting well to the countless rounds of radiation. Nonetheless, at the six-month brand, the medicine concluded operating and the tumor stretched larger.
Medical professionals told Addy’s mothers that there was nothing more we are able to do and that they are able to take her dwelling to “make memories.”
However, the Sooters weren’t about to give up on fighting for their daughter’s life that easily.
They uttered the tough decision to take the toddler to Mexico to participate in an “experimental treatment.”
Starting in the summer of 2017, the Sooters went to Mexico every three to six weeks to get therapy for Addy … but sadly in May of this year, they received the heartwrenching word that her tumor was back and had spread down her entire spine.
There was rightfully good-for-nothing more that is able done, other than to say goodbye to their sugared little girl.
In an feeling pole, Addy’s dad, Matt, shared an image of his son Jackson alleging goodbye to his little sister, along with a caption that certified the goodness of God amidst this misfortune 😛 TAGEND
“A little boy should not have to say goodbye to his partner in crime, his participate copulate, his best friend, his little sister. This isn’t how it’s is expected to be. But this is the busted macrocosm “were living in”. Addy’s manifestations have changed rapidly over the past daylight and a half. Yesterday she woke up as her spunky playful soul. While we are continuing realise short instances of our girl she can no longer chew or immerse without difficulty and she’s sleeping the majority of members of the time now and we’ve acknowledged her into inpatient care. Most likely she doesn’t have much time left. For our family and working close friends if you feel you need to tell her goodbye we recommend you contact us and do so soon. Pray for Jackson. He doesn’t want to leave her slope and we won’t see him. Cry for us. That we have the right words and can reach the necessary arrangements in time.
Always recollect: God is in this situation, He’s up to something, and He’s up to something GOOD.”
On June 3, Addy took her final wheeze, surrounded by her family.
While they are devastated by her demise, the Sooters are optimistic that God will work all things out for good for those who love Him, as promised in Romans 8: 28.
According to Matt, even though they “miss their sissy, ” they are glad she’s no longer in pain and is instead lie in the arms of Jesus.
Addy bequeathed her mentality, spine, and tumors to scientific research “in hopes of saving future children from a same fate.”
In lieu of heydays, the Sooters requested that parties “please consider making a donation to the Michael Mosier Defeat DIPG Foundation, Arkansas Children’s Hospital, or Ronald McDonald House Charities of Arkansas.”